February 26, 2026, 20:00 (GMT+3)

TNS–AAN–EAN–WFN Joint Scientific Webinar for Rare Disease Day Rare Neurological Disorders – From Global Perspective to Clinical Practice

We kindly request you to pre-register to receive the webinar access link.

Details

Scientific Program

TNS–AAN–EAN–WFN Joint Scientific Webinar for Rare Disease Day

🇹🇷 TRT (GMT+3) 🇪🇺 CET (GMT+1) 🇺🇸 EST (GMT-5)

Distinguished Chairs

Murat Terzi, MD

President, Turkish Neurological Society (TNS)

Hacer Durmuş, MD

Executive Board Member, Turkish Neurological Society (TNS)

TRT 19:45 - 19:50
CET
17:45
EST
11:45
Opening

Murat Terzi, MD PhD

President, Turkish Neurological Society

TRT 19:50 - 20:00
CET
17:50
EST
11:50
Welcome

Welcome Remarks

Executive Board Members

Turkish Neurological Society

TRT 20:00 - 20:20
CET
18:00
EST
12:00
TNS

Rare Neurological Disorders in Türkiye

Hacer Durmuş, MD, Prof.

Professor of Neurology, Istanbul Faculty of Medicine
Executive Board Member, TNS
Chair, TNS Neurogenetics Subcommittee
Executive Board Member, AOMC
Member, WFN Specialist Group Rare Neurologic Diseases

TRT 20:20 - 21:00
CET
18:20
EST
12:20
AAN

Rare Genetic Epilepsies and Developmental / Epileptic Encephalopathies

Elizabeth Thiele, MD, PhD

Professor of Neurology, Harvard Medical School
Director, Pediatric Epilepsy Program
Director, Herscot Center for TSC, Massachusetts General Hospital
Carol and James Herscot Endowed Neuroscience Institute Chair

TRT 21:00 - 21:40
CET
19:00
EST
13:00
AAN

Myasthenia Gravis: The New Therapeutic Era

Mamatha Pasnoor, MD, FAAN

Professor of Neurology
Program Director, Neurology Residency
Neuromuscular Division, The University of Kansas Medical Center

TRT 21:40 - 22:20
CET
19:40
EST
13:40
EAN

Rare Diseases in Europe: Recent Therapeutic Advances in Rare Neuromuscular Disorders

Marianne de Visser, MD

Neurologist, Emeritus Professor of Neuromuscular Diseases
University of Amsterdam, The Netherlands
Chair, EAN Rare Diseases Subcommittee

TRT 22:20 - 23:00
CET
20:20
EST
14:20
WFN

Cerebrotendinous Xanthomatosis

Antonio Federico, MD

Emeritus Professor of Neurology, University of Siena
Editor-in-Chief Neurological Sciences
Chair WFN Specialist Group Rare Neurologic Diseases

Stay Informed

Join our mailing list to get updates on upcoming webinars and scientific events.

Your email is safe with us. No spam.

Zoom Access Guide

  • Click the "Join (Zoom)" button above to start the process.
  • Fill out the registration form (Name, Surname, Email, Profession).
  • Once approved, the webinar link will be sent to your email address.

Desktop & Mobile:

  • Download from zoom.us/download.
  • Or install the "Zoom" app via App Store or Google Play Store.
  • Your microphone will be automatically muted upon entry.
  • Use the "Raise Hand" button to ask for permission to speak.
  • You can submit your questions via the Chat or Q&A box.